Ill Boss is a newly incorporated Texas nonprofit corporation seeking its founding Board of Directors. We are building something that has never existed quite like this before — and we need the right people in the room.

About Ill Boss

Ill Boss™ is a nonprofit organization dedicated to educating, empowering, and advocating for individuals living with chronic and invisible illness — with an intentional focus on rare disease patients, conditions that disproportionately affect women, and conditions that disproportionately and specifically affect Black women.

We believe in Sustainable Sovereignty: the idea that illness should not strip you of your ability to build a dignified, self-determined life. Our programs include patient education, peer advocacy training, a free health tracking app, entrepreneurship support for chronically ill business owners, and a micro-grant fund for chronically ill creatives.

Ill Boss was founded by Ashley Nicole Johnson, a Dallas-based creative entrepreneur and rare disease patient living with Polycythemia Vera, chronic migraine, chronic fatigue, hypertension, anxiety, and depression.

Our Programs

• 📚 Ill Boss Education Initiative — accessible, equitable education about chronic and invisible illness with a spotlight on rare diseases and underrepresented conditions
• 🤝 The Boss Community — peer support with dedicated spaces for rare disease patients and Black women navigating illness
• 🗣️ The Boss Advocate Program — patient advocacy training including medical racism and rare disease modules
• 📱 My Health Advocate — a free digital health tracking and self-advocacy tool, funded by grants so it's always free to users
• 💼 The Ill Boss Business Lab — entrepreneurship support for chronically ill business owners, built around Sustainable Sovereignty not hustle culture
• 🎨 The Ill Boss Creative Fund — micro-grants for chronically ill creatives, artists, and entrepreneurs

What We're Looking For

We are recruiting founding board members who bring professional expertise, personal integrity, and genuine alignment with our mission. We are especially seeking candidates from the chronic illness community and those with lived experience navigating the intersections of race, gender, and health.

Open Seats