The ask
In order to help Industry to more easily health research data that they’re able to use, we need to surface “data use limitation” for datasets through the IG UI. I’ve found it explicitly mentioned as a key recommendation from the The Association of the British Pharmaceutical Industry:It is essential that there is clarity on the availability of health data in the UK to commercial bodies and on the uses to which they can be put in medicines development. The quality of the data and processes for accessing the data must be clear. This must be supported by appropriate governance, standards and regulations and a suitably skilled bioinformatics workforce.
We’ve already got the data quality and data access angles covered, so it would be great to complete the triple and help pharma companies easily find the datasets that they’re allowed to use.Data use limitation is already in the schema with a reference to this ontology https://www.ebi.ac.uk/ols/ontologies/duo/terms?iri=http%3A%2F%2Fpurl.obolibrary.org%2Fobo%2FDUO_0000001 There are a lot of different categories though so we may need to think about how we classify or group them.
Hope that makes sense, if not, give me a shout. Richard E
[SV] In addition it would be worth asking the complementary DUO code in the DAR application by researchers so the system could automatically match make -