1 Mar 2026
Travel Insurance MUK Co-ordinators blog notes
Travel Insurance from MUK Co-ordinators Blog.pdf
20 Feb 2026
1. Myeloma Patients Europe (MPE) unites 53 patient support organisations across 33 European countries. They provide education about living with myeloma, help to develop access to new therapies, and conduct research to amplify the patient voice. Myeloma UK are one of the organisations under the MPE umbrella. They are now looking for people across these 33 countries to share their treatment experiences. By doing so, you are helping to shape the future of myeloma care. In particular, MPE would like to hear from people that have been on any of the following treatments:
Bispecific antibodies (such as teclistamab or elranatamab)
CAR-T cell therapy (such as cilta-cel or ide-cel)
Antibody-drug conjugates (such as belantamab mafodotin)
**Selinexor** (a selective inhibitor of nuclear export)
2. National Cancer Plan for England was published Wed 4 Feb 2026. On this link MUK share their thoughts on the new plan and what it means for people living with myeloma
3. BPD, a cutting-edge treatment that has been shown to stop myeloma in its tracks for more than 32 months on average, has been approved at second line. NHS patients in England and Wales will be the first to have access to this treatment worldwide.
4. The Myeloma Minutes podcast is now live. Join Drs Jam and Sally for clear, compassionate conversations about living with myeloma - from diagnosis to remission and beyond
5. Myeloma in Black communities. Myeloma affects Black at a higher rate than White people. The link details symptoms of myeloma, and personal stories
6. Myeloma UK Research Strategy - click and see how you could get involved with the MyeTRIAL partnership working with the University of Leeds
7. Support Group Leaders blog. On our private blog with other support group leaders various topics are raised for discussion. We cannot give you access but we can relay information from the blog. Please just ask Iain if you have an interest in any of the following blogs: travel insurance, promotional materials, topics for support group meetings, fundraising, 3rd party emails, blister pack recycling, 2026 posters and leaflets, MyMM Sanius Health app, Pakistan Punjabi translation, A&E attendance, CAR-T support, and more. The blog allows interaction and we casn ask each other advice.
24 Jan 2026
The National Audit Office (NAO) confirmed in January 2026 that MKUH will be the first to be delivered under the New Hospital Programme 2.0 design, moving to single room occupancy, target 2031/2. New imaging centre due to open in March