What We Believe

We've all been there, ready to throw the phone across the room, feeling overwhelmed by how to best care for our special kiddo, and seeking others who understand. Our kids' care coordination falls to us and sometimes we'd benefit from a little help. How do we find people like us? I'm building the community that I wanted but that didn't exist when I was starting my journey parenting my daughter with special needs. I'm building this for me and I'm building this for you. Come and learn more so we can become empowered together.

• We believe that parents of children with special needs benefit from connecting with one another.
• We believe there are similarities between our parenting journeys that warrant problem solving together.
• We believe we can advocate for one another to meet our parenting needs.

Pilot Details

To test these beliefs, we’re running a 5-week, virtual pilot June 28th - July 30th and looking for participants. Our hypothesis is that working moms based in the US will benefit most from what we’re creating and this pilot puts that to the test. If you're a stay-at-home caregiver and this approach sounds interesting, please consider joining the pilot. We'll have a range of caregivers participating. We’re selecting a small cohort to ensure participants have the best experience possible.

In terms of what you can expect:

• Participants will be invited to our digital parent portal. This will be a place to collaborate and share information with a curated group of people you can contribute to and learn from.
• We will be selecting a few participants to also receive support fulfilling a well-defined, current need. For example, this may take the form of piecing together the right medical team or developing a long-term care plan including financial and transition planning. Given how early we are in discovering the best ways for this to work, we probably won't be able to do this for all participants. This approach ensures that we don’t spread ourselves too thin and that each participant derives value from the pilot.
• Participants will also partake in feedback conversations (as individuals and potentially as a group) to share more about your needs and challenges, provide feedback on how you'd like this service to work, and brainstorm how it could be improved.

Our ideal pilot participants will be:

• At similar stages of their parenting journeys with at least one need in common. (When we say "stages" we're thinking across a multitude of milestones like pre-diagnosis, school-age, etc.)

• Eager to partner with us on meeting that need. (When we say "need" we mean things like identifying a therapist or creating a special needs trust.)

• Willing to engage in our digital parent portal with other parents from anywhere across the US.

• Flexible and adaptable to the unpredictable nature of pilots plus willing to share honest feedback.

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During the pilot, we commit to:

• Selecting participants that have something to offer the group.